AOSpine RECODE-DCM Study

Participant Registration Form

Principal Investigators: Mark R. Kotter and Benjamin M. Davies.

You are registering to participate in RECODE-DCM, a consensus project to define the key research questions and measurements in degenerative cervical myelopathy (DCM).





















What is DCM?


DCM is an umbrella term that describes a number of conditions in which the cervical spinal cord is injured due to degeneration of surrounding structures. Wear and tear of the bones, joints, ligaments and discs of the cervical spine can lead to deformities of the structure of the spine, compressing the spinal cord that is contained within it. Another common name for DCM that you may have heard is cervical spondylotic myelopathy (CSM).

What is a consensus project?

A consensus project gathers and shares opinions from all experts involved. You are participating as an expert in DCM, either because you suffer from the condition or help someone who does. Other types of experts include surgeons and other medical professionals. Initially, opinions will be gathered and shared using a series of online surveys. To reduce your time commitment, you will be randomly allocated to a subsection of this project. All those who contribute to any subsection of this process and wish to be acknowledged, will be acknowledged on all published output. Further information can be found in the following document, or by contacting admin@recode-dcm.com.


Which of these best describes your experience of DCM?

Age

Biological sex

Country of residence

You have been randomized to answer questions on research priorities. There is an option to complete this survey anonymously.
Please be aware, in order to be acknowledged on published material and invited to the consensus meeting, a name and email contact are required.


First Name


Last Name


Preferred email address

I would like to to be acknowledged as a contributor to RECODE-DCM on any published material:

After completing ALL rounds of the online survey, I would be interested in being contacted about attending the RECODE-DCM international face-to-face consensus meetings:

I would like to be contacted about other DCM research:

I confirm that I have read the Conflict of Interest Information Sheet and hereby declare any conflicts of interest I may hold (e.g. competing professional or financial interests, or any other factor that may influence my responses):

I confirm that I have read the Participant Information Sheet including details of the management of my personal data and risks/benefits. I have had the opportunity to consider the information and ask any questions I may have. I understand that my participation is voluntary and that I am free to withdraw at any time without giving any reason, without my medical care or legal rights being affected. I hereby consent to be a RECODE-DCM study participant:


For more information, please see our study website:
www.recode-dcm.com

If you have any questions or concerns, please contact us via email:
admin@recode-dcm.com

If you are upset or concerned following completion of the survey, support is available from our charity partner:
www.myelopathy.org

 
 
 
 
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