RECODE-DCM Study

Priority Setting Partnership - Round 1 Survey

Principal Investigators: Mark R. Kotter and Benjamin M Davies.



You have been randomised to participate in the Priority Setting Partnership -
a process to define the top 10 research uncertainties in DCM


What is a priority setting partnership (PSP)?

We would like to welcome you to our PSP workflow. A PSP is a collaboration between people with a medical condition, their carers, healthcare professionals and researchers that aims to understand the areas that are the most important focus for future research. Our process is designed to ensure transparency and balanced inclusion of all groups. We aim to reach consensus on the areas of DCM that are currently under-researched and need to become a future research priority.

Our aim is to produce a list of the top 10 most important unanswered areas in DCM. Our hope is that future DCM research and funding is guided by our collective list and that these uncertainties are promptly and thoroughly explored. This will ensure future DCM research is as meaningful as possible to the people who need it most.

What happens during participation?

The PSP consists of 2 stages, online surveys and a face-to-face consensus meeting. Below you will find Round 1 of the online survey, with each survey taking between 10-20 minutes. In the survey, you (a group of DCM experts) are asked a series of questions about what you believe the most important research uncertainties are. Round 1 is a series of open questions. It is broken up into sections to help stimulate your ideas. After Round 1 closes, we will combine your opinions into a series of research questions and review the literature to see whether they have been answered. Unanswered questions will then be sent back to you in Round 2, where you will be asked to choose what you think are the top 10 most important. The results of Round 2 will then be discussed at a face-to-face meeting, and a final shortlist produced.

It is very important that you complete all rounds of the survey. Without full completion we are unable to include your valuable contribution in our study. This risks some key groups being underrepresented, which may influence our findings. However, please be aware that you are free to withdraw from the study at any point.


Below you will find categories within which you can submit what you think are the most important questions for future DCM research to answer. These categories have been chosen simply to help stimulate your thoughts - it does not matter in which box you write your ideas.

There are no restrictions on the number of questions you can submit or the format in which they are written.


Diagnosis: "Detecting DCM" - What question(s) about the diagnosis of degenerative cervical myelopathy would you like to see answered by research?



 
  • My Answer
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NOTE: Your answer is required before you can see other experts' arguments...

Treatment: "Managing DCM" - What question(s) about the treatment of degenerative cervical myelopathy would you like to see answered by research?


 
  • My Answer
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NOTE: Your answer is required before you can see other experts' arguments...

Long-term care and follow up: "Living with DCM" - What question(s) about the long-term care and follow up of degenerative cervical myelopathy would you like to see answered by research? This includes various aspects of living with degenerative cervical myelopathy, for example, monitoring requirements and lifestyle changes.


 
  • My Answer
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NOTE: Your answer is required before you can see other experts' arguments...

Other – What other question(s) about degenerative cervical myelopathy that do not fit into the above categories would you like to see answered by research?


 
  • My Answer
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NOTE: Your answer is required before you can see other experts' arguments...

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