RECODE-DCM Study

Priority Setting Partnership - Round 1 Survey

Principal Investigators: Mark R. Kotter and Benjamin M. Davies.


Word Clouds


The RECODE-DCM PSP is an international collaboration between the University of Cambridge, AOSpine and the James Lind Alliance (JLA).

JLA is a non-profit priority-setting initiative that brings together people with a medical condition, their supporters and healthcare professionals to identify the top 10 unanswered questions in areas of health research. JLA are interested in evaluating their current methodology. To assist with this, we have created word clouds of the top unanswered questions in DCM following consultation with a group of people with DCM. The size of the words in each cloud relates to its popularity, as voted by a group of people with DCM. We want to evaluate whether these word clouds help to generated additional representative research questions.

Half of the participants of RECODE-DCM will be shown the word clouds after having first completed their own suggestions on the previous page. The other half of the participants will not be shown the word clouds and will proceed directly to the next step.

You have been chosen at random to view the word clouds. Please view the word clouds below. If the word clouds lead you to think of additional DCM questions which you did not enter on the previous page, please add to the answer boxes below. You can click back to check what you entered on the previous page if you cannot remember all of your responses.

The data generated from this step will be analysed separately to the main RECODE-DCM analysis. This will enable us to assess the impact the word clouds have had on your responses and whether they have improved the efficiency of the overall process. The results of this extra step will not be used to define DCM research priorities but will be important to help improve future JLA priority setting partnerships in other conditions.


Below you will find categories within which you can submit what you think are the most important questions for future DCM research to answer. These categories have been chosen simply to help stimulate your thoughts - it does not matter in which box you write your ideas.

There are no restrictions on the number of questions you can submit or the format in which they are written.


Diagnosis: "Detecting DCM" - What question(s) about the diagnosis of degenerative cervical myelopathy would you like to see answered by research?

The following word cloud is to stimulate your own ideas. It contains words that have been associated with the diagnosis of DCM by a team of people with DCM and medical professionals


 
  • My Answer
  • All Answers
NOTE: Your answer is required before you can see other experts' arguments...

Treatment: "Managing DCM"- What question(s) about the treatment of degenerative cervical myelopathy would you like to see answered by research?

The following word cloud is to stimulate your own ideas. It contains words that have been associated with the management of DCM by a team of people with DCM and medical professionals.


 
  • My Answer
  • All Answers
NOTE: Your answer is required before you can see other experts' arguments...

Long-term care and follow up: "Living with DCM" - What question(s) about the long-term care and follow-up of degenerative cervical myelopathy would you like to see answered by research? This includes various aspects of living with degenerative cervical myelopathy, for example, monitoring requirements and lifestyle changes.

The following word cloud is to stimulate your own ideas. It contains words that have been associated with the long-term care and follow up of DCM by a team of people with DCM and medical professionals.


 
  • My Answer
  • All Answers
NOTE: Your answer is required before you can see other experts' arguments...

Other – What other question(s) about degenerative cervical myelopathy that do not fit into the above categories would you like to see answered by research?

The following word cloud is to stimulate your own ideas. It contains words that have been associated with other aspects of DCM by a team of people with DCM and medical professionals.


 
  • My Answer
  • All Answers
NOTE: Your answer is required before you can see other experts' arguments...

Please click on the red arrow to go back to the first page:


 
 
 
 
Chat To Do
 
Powered by Calibrum